Powering transformative change through collaborative action: The Healthcare Information for All Strategy
Neil Pakenham-Walsh, Healthcare Information For All (HIFA)
2Healthcare Information for All, United Kingdom
Background: According to the World Health Organization (WHO), poor quality of care in low- and middle-income countries contributes to 5.7-8.4 million deaths annually. Failure to apply and access reliable healthcare information is a leading cause of preventable deaths and suffering worldwide. Healthcare Information for All (HIFA) is a global social movement born in 2006, with a commitment to promote communication, understanding and advocacy among all stakeholders in the production, exchange and use of reliable healthcare information.
Objectives: To understand the HIFA mission, vision and strategy to promote universal access to reliable healthcare information and prevent misinformation and to identify collaborative approaches to strengthen global health communication and coproduction of evidence-based health information.
Methods: HIFA utilises a “Theory of Change” model whereby HIFA’s inputs, activities and outputs translate into essential outcomes and impact (Figure 1). The impact of HIFA contributes to meeting basic needs, empowering communities and achievement of global health goals like Universal Health Coverage and Sustainable Development Goals (Figure 2). HIFA evaluates ‘value co-creation’ across several domains, using quantitative and qualitative indicators, including value for HIFA members and participating organisations.
Results: With more than 20,000 multidisciplinary members from more than 180 countries, 274 country representatives, interacting over 6 global forums in 4 different languages, and 434 international support organisations, HIFA continues to evolve as a robust global health information system (Figure 3). Accomplishing instrumental milestones (Figure 4), the HIFA strategy describes seven strategic shifts necessary to accelerate progress towards universal access to reliable health information (Figure 5)
Conclusions: With a visionary future, HIFA’s priority is to convene key stakeholders to accelerate progress towards universal access to reliable healthcare information. Amidst challenges with funding and staff infrastructure, HIFA continues to engage strategically with the WHO to develop initiatives such as the WHO-HIFA Collaboration Plan (Figure 6) to identify best practices, opportunities and challenges from stakeholders and support multilingualism in global health. Healthcare consumer involvement: HIFA is an organisation for the people, by the people. The members represent the full spectrum of healthcare providers and consumers including patients, caregivers, general public, policymakers, researchers, social scientists, etc., whose contributions are fundamental to the advocacy of HIFA’s vision.